The thing about having a mystery diagnosis is that there isn’t any text book I can refer people to. There’s no support group for people like me. As a result, it has been necessary for me to learn to be my own advocate, healthcare provider and number one supporter, all while also being the patient. It’s not something I would wish on anyone yet I also see the upside to these experiences. Because of them, I can relate to others when they are going through their own hardships. I know better than to think that people should snap out of it or find a distraction. I have also learned to be more adaptable and to recognize that life isn’t a series of check boxes. It’s a journey, and like most journeys it is often unpredictable.